Links
by BrianRobinson
 Kaleidoscopic
Jul 07, 2011 | 2652 views |  0 comments | 11 11 recommendations | email to a friend | print | permalink

Dealing with autism is tough.  It's more and more common, though, so more and more people are having to deal with it.  But, in a silver lining, there are now many groups around, from national to local, that are there to help.  If you want or need to learn more, here are five sites to check out, also from national to local:

Autism Speaks http://www.autismspeaks.org/ - A national group that in addition to advocacy also funds science and research. 

Autism Society http://www.autism-society.org/ - A national group mainly interested in advocacy. 

Autism Society of Alabama  http://www.autism-alabama.org/about-us.html - A statewide group, affilated with the Autism Society.  Holds walks in the state, has advocated for autism legislation in Montgomery.

Alabama Autism & Asperger's Statewide Info and Support Network http://www.alabamaautism.org/ - A statewide support group, started by a dad with two children on the spectrum.  We are good friends with the founder, Mr. Tumlin, and can say he has does wonderful work setting up a group where people can ask questions and get help - he has recently added a shortcut for a special ed. attorney, which is greatly important.  He has also been involved in advocacy, ferrying parents to Montgomery for autism legislation.

Calhoun County Alabama Autism Information Website http://www.calhouncountyautisminfo.com/ - This is my wife's website, set up mainly for local support but affilated with the Autism Society of Alabama.  When Xan was diagnosed, we had to find out so many things on our own that she resolved to help others start out better.  If you remember the Walk for Autism at Zinn Park back in April, that was her walk.  She's also arranged some speakers to come down and a autism-friendly trip to the planetarium.  On her site is links to local dentists, speech therapists and much more, a link to online support/networking groups and a daily twitter feed with autism news. 

I hope these help.

Pieces
by BrianRobinson
 Kaleidoscopic
Jul 07, 2011 | 1397 views |  0 comments | 12 12 recommendations | email to a friend | print | permalink

The symbol of many autism awareness groups is a multicolored puzzle with a piece missing.  I'm sure you've seen car magnets like that a lot more often than you used to, automotive symbols of how fast autism has exploded and how many people are dealing with it, so you know what I'm talking about.  There are several reasons for the symbol, from 'solving the puzzle of autism' to 'every person with autism is different' to 'the mystery of what causes it'.  It may have as many meanings as autism has different effects.

But I see another facet.

Xander likes some things in their wholeness - give him a Bear in the Big Blue House show, or Zoboomafoo, and he'll watch it from beginning to end.  (I use 'watch' loosely, since jumping up and down and running back and forth is his usual TV viewing positions.  He may be the rare person who loses weight when the TV's on.)  But others?  He'll only watch parts of them.  He has clear favorites - opening themes and closing credits of most shows, but the middle he doesn't care about.  I've noticed if given his choice on music, he will do the same - not just particular songs on a CD, but only up to a certain part of it, then he asks for another song, which will again go to a part and then stop.  Books as well - certain parts he loves and will open to that point time and again.  Rest of it?  Take it or leave it.

(I once saw a list of 'things you never knew until your kid had autism' and one of them was how much fun credits are, so his love of them doesn't seem unique.  It may just be the up and down scrolling on the screen that so interesting; Xan also loves to watch me play Guitar Hero.  As to why it's so doggone funny, who knows?  Because it's different, vertical moving inside of horizontal fixed?)

Speaking outside my experience, this seems to fit in other autistic conditions.  For example, many Asperger's people tend to fixate on one particular thing, like trains or art or dinosaurs, and learn about it everything they can.   And as I said in another posting, the single-minded focus on one thing - one piece, if you will - on the playground or in the classroom is quite common.

Maybe this love of certain pieces of a whole fits in with the sensory issues - certain parts sound, or look, better.  Like us having a favorite part of a book or movie or song, but in his case it's not just liking it more, but having it fit in more, make more sense, feel better.  As evidence of this, the parts Xander does like, he can take loud.  When it's a scene he likes - the final space and land battle in Serenity, or the Green Dragon fight in How To Train Your Dragon - no matter how loud it gets, all-the-way-up-things-vibrating-off-the-shelves-loud, he'll jump and laugh and run back and forth and stay in the room to watch it.  Other parts, he covers his ears and leaves.

I wish I could say there was something in common with what he likes, but none that I can tell.  High-pitched lasers; deep explosions; plinkly banjo music; a crunchy guitar chorus; 'they must not get our apples down/come on come on get out of town!' (Ten Apples Up On Top by Dr. Seuss, for those of you past the Dr. Seuss stage); an end page picture of...well, nothing really.  Random pieces here and there of sounds and sight that fit into his senses better than the rest of the world.

A fitting puzzle piece that's a puzzle in itself.

 

RSS feed
by BrianRobinson
 Kaleidoscopic
Jul 04, 2011 | 1199 views |  0 comments | 9 9 recommendations | email to a friend | print | permalink

For those of you interested, you can sign up for an RSS feed of this blog by going to:

http://annistonstar.com/rss/about_us_rss_feeds/Kaleidoscopic?content_type=blog entry&user_ids=3950491

 

Thanks.

 

Solitude
by BrianRobinson
 Kaleidoscopic
Jul 04, 2011 | 1431 views |  0 comments | 10 10 recommendations | email to a friend | print | permalink

Autism - from the Greek word autos, meaning self.

One of the more isolating facts of autism is the desire and preference to be left alone and do their own thing.  Whether this means only doing one thing on a playground (like swinging), or sitting alone in a corner organizing their blocks, or a rather more forceful refusal to stop something and start something else, it's a simple and evident wish to do their own thing.  It's almost admirable, in its way - a single minded stubbornness of purpose, of knowing what they want and refusing to do anything else, even as it sets them apart from everyone else.  The debatable benefit is not knowing, or perhaps not caring, about how this sets them apart.  I prefer to think it's not knowing.

(I only speak from our experience.  I would guess that families who have members with Asperger's Syndrome would probably argue there's nothing better about what they go through - being more able to blend in 'normal' society also makes the differences more evident and painful to know.  So no insult is meant, nor any attempt to say condition A is better than B.  Every one is their own special balance.)

But their solitude has an effect on their family.  I can count on both hands how often we've left Xan with anyone else outside of school in his nearly ten years.  I can count on one hand how many times he's been to a movie.  I don't need any digits at all to figure how often he's been away from us at night, or been at a friend's house, or been outside without one of us outside as well watching him.  His aloneless has driven us to be separate from others.  Some of it is simple defense - we know the warning signs, the verbal shorthand, what he can eat, what he likes on TV.   Some of it is exhaustion - it's much easier to have a full and frank exchange of views - or, as it seen by others, an argument over what he'll do or how he'll act - when it's behind closed doors.  Some of it is protection - by limiting the contact, we limit the dangers.

In addition to the forced isolation, every family has different issues with their situation.  Xander's diet has expanded a lot - some families have kids who can literally eat one or two things.  Xander can handle going out of the house at the spur of the moment - some kids have to have a minute by minute day mapped out to get through it.  On the other side of the coin, Xan doesn't talk, which is a whole universe of problems.  Taking him to the doctor or the dentist can be a wrestling match.  These issues may be unknown to others, or to a greater or lesser extent.  So even among our little community of families affected by autism, we have all separate stories and problems.

But, to end this on a happier note, we are also alone in our triumphs.  A few weeks ago, Xan spontaneously told mommy "I love you."  We know he does (at least with mommy, who is a clear favorite.  It goes Mommy, cats, teachers, classmates, a couple of stuffed animals and THEN daddy, and that's on a good day).  He shows it a lot - holding out his hand for a kiss, coming up and trying to tickle her, or demanding her attention to play with him - but this was the first time he told her without any cueing or repeating.  That may be too little or too much for some other family, but they can tell of other moments of happiness that we wouldn't know of that made them ecstatic.

Every trouble and triumph is unique in itself.

Weightless
by BrianRobinson
 Kaleidoscopic
Jun 30, 2011 | 513 views |  0 comments | 7 7 recommendations | email to a friend | print | permalink

Xan likes swimming, and swinging, and jumping in bouncy houses.  We've got one of those exercise balls and he'll fling himself at it to bounce up and down on the edge of balance between control and the emergency room.  He loves to grab your hands and spin you both around in a whirling circle until you're about to fall down or throw up - and then he'll leap in the air for some extra centripetal oomph.  After only a few broken furniture pieces and almost broken bones, he has decided doing this in cramped places (such as the living room) isn't the best idea.  (...usually, but it pays to be on your guard.)

What do all of these have in common?

Xan used to take physical therapy in Birmingham.  We stopped when he really started resisting it, since driving an hour to fight for forty-five minutes seemed like a bit of a waste - we could save a drive and be yelled at here just as easily.  One of the times we went, his therapist showed us some calming tricks that involved locking a joint, knee or elbow, and gently thrusting down on the foot/hand.  I'm probably missing some critical step here, so don't try this at home unless some therapist shows you the trick.

The therapist explained that many autistic kids have, for lack of a better term, a strangeness of their own bodies - feeling out of place in their own skin.  Could be that sensory overload again, could just be a mental disconnect that's an offshoot or a result of the differences in their brains, may be an aftereffect of everything else they go through.  We don't know yet.  But doing that joint-lock/soft thrusting helps them recenter, feel better.  A kind of reset button.  If you've seen an autistic child hit themselves lightly with a hard object on a joint (Xan likes books and elbows), that may be doing the same thing - a contact that helps realign them.

What does jumping in bouncy houses, being whirled in the air, swimming and swinging have in common?

Every one has that fleeting second or two of ... disconnect.  Free of gravity, of weight, of contact, of everyday being.  Maybe those blinks of freedom help them get away from what they have to go through all the time.

For a few pauses, they are free of their everyday heavy weight.

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School board moves to speed Saks High repairs
by Brian Anderson
banderson@annistonstar.com
Jun 18, 2013 | 456 views |  0 comments | 9 9 recommendations | email to a friend | print
Damage was visible Tuesday at Saks High School from a fire Sunday morning. (Photo by Trent Penny/The Anniston Star)
Damage was visible Tuesday at Saks High School from a fire Sunday morning. (Photo by Trent Penny/The Anniston Star)
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Officials didn’t know Tuesday what it’ll cost to fix fire damage at Saks High School, but took steps to speed up repairs with the start of classes two months away. At a quickly called meeting Tuesday, the Calhoun County Board of Education declared Saks High an emergency situation in order to circumvent state bid laws. The meeting was a response to an electrical fire discovered Sunday at the school which caused smoke and water damage to one of the campus’ four buildings. Principal Jody Whaley said he was unsure if the school would be ready to re-open when students return to school on Aug. 19. “I’m just hopeful that it is,” Whaley said, standing in a second-floor hallway Tuesday afternoon littered with ceiling tile and soot. “We’re looking at all our options at this point.” Smoke damage was present throughout the building Tuesday, and much of the second floor’s ceiling was destroyed. Water had puddled in several of the second-floor classrooms from efforts to extinguish the flames Sunday, and much of the building smelled like sulfur. Joe Dyar, superintendent of Calhoun County Schools, said the emergency declaration allows the board a loose time frame to make decisions about fixing damage at the school. Mike Fincher, director of safety for Calhoun County Schools, told the board that he met with engineers and insurance adjusters Monday and Tuesday to discuss cleanup at the building. No cost estimates for the damage were available Tuesday. “Phase one is clean-up enough to be able to assess the damage,” Fincher said. “We have to do that just to get to be able to find out what damage we have, and how to correct that damage.” Staff Writer Brian Anderson: 256-235-3546. On Twitter @BAnderson_Star.
Anniston Middle School. (Photo by Trent Penny/The Anniston Star)
Anniston Middle School. (Photo by Trent Penny/The Anniston Star)
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Anniston to extend search for city manager
by Paige Rentz
prentz@annistonstar.com
Jun 18, 2013 | 359 views |  0 comments | 15 15 recommendations | email to a friend | print
The city of Anniston is extending the deadline in its search for a new city manager and offering more money to give the City Council a wider pool of applicants to consider. “We want to take our time,” Mayor Vaughn Stewart said. “We want to increase the number of applicants ... and make sure we leave no stones uncovered in getting the word out around the country that the city of Anniston is looking for a new city manager.” By Saturday, the initial deadline, 41 individuals had submitted applications. Candidates now have until July 13 to apply for the top job at City Hall. Councilwoman Millie Harris, standing at City Hall with the list of candidates in hand, said reading the applications has been a very time-consuming process. “We’ve got some good applicants, but we would like to increase that applicant pool,” she said, noting that some of the applicants simply are not qualified. In an effort to entice more candidates, the city is also extending the salary range for the position to a maximum of $150,000, Stewart said. The job was initially advertised at $90,000-$120,000. “In the big scheme of things, hiring a city manager is one of the biggest decisions this council will make,” Stewart said. “Under this form of government, that’s a huge position, and we want to make sure we do it right.” Under the city’s council-manager form of government, the City Council hires the city manager, who has the power to hire other city employees. The only other appointment the council makes is for municipal judge. “We cannot direct department heads; we cannot direct employees,” Stewart said. “All was can do it make sure we have a qualified manager in place that will carry out the policies the council adopts as a means to move the city forward.” Stewart said the council is looking for a progressive, forward-thinking, transformative leader with a sense of enthusiasm that can unite both city employees and the community. Harris said she is looking for someone who has successful experience as a city manager or assistant city manager in a city comparable to Anniston, and it is important to her that a candidate have a bachelor’s or master’s degree in public administration. Managerial experience as a department head and credentials from the International City/County Management Association are also pluses, she said. More than half of the applicants have managed local governments ranging from Jupiter, Fla., to Dover, Del. About 10 other applicants have served as assistant managers, department-level managers, or in state or federal agencies. Those with no municipal management experience come from such backgrounds as the military, construction, media, consulting and non-profits. Harris said she’s also on the lookout for red flags like frequent job changes. Stewart noted the city’s seven managers in 15 years and said the council is looking for a candidate who will stick with the city for a significant period of time. Hoyt said the city advertised the position on several national job banks and with municipal associations all over the region, including those in Virginia, North Carolina, South Carolina, Georgia, Alabama, Mississippi, Oklahoma, Tennessee and Kentucky. He said he will again advertise the position in these same locations, making note of the salary change. Asked about the possibility of the city hiring a search firm to help lure applicants, Hoyt said he duplicated the processes he’s been through as an applicant in searches run both by cities and search firms. “We’re basically following the same pattern that I’ve seen done time and time again,” he said. “We can hire somebody and give them a bunch of money to do the same thing.” Staff writer Paige Rentz: 256-235-3564. On Twitter @PRentz_Star.
Anniston Middle's "failing" grade may not lead to tax credits after all
by Tim Lockette
tlockette@annistonstar.com
Jun 18, 2013 | 3222 views |  0 comments | 45 45 recommendations | email to a friend | print
Anniston Middle School. (Photo by Trent Penny/The Anniston Star)
Anniston Middle School. (Photo by Trent Penny/The Anniston Star)
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Anniston Middle School is among 78 "failing" schools where students' families will qualify for a state tax credit under the Alabama Accountability Act, state school officials announced Tuesday. But whether any of those families will be able to collect the tax credits remains very much in doubt. Anniston's school board has already voted to close the middle school. Local private schools have said they won't accept a set of scholarships that are linked to the tax credits. Local public schools say court orders in the state's decades-old desegregation case may prohibit Anniston students from transferring. “I will approve no transfers until we’ve cleared this with our attorneys in Lee v. Macon or the Justice Department,” said Joan Frazier, superintendent of Anniston City Schools. Frazier and school leaders across the state had long awaited the release of a list of schools determined to be "failing" by state school officials. Under the Alabama Accountability Act, passed by the Legislature in February, the state will give tax credits of about $3,500 to families with students in "failing" schools -- if they transfer their children to non-failing public schools or enroll them in private schools. List long awaited Just which schools were "failing" remained a matter of debate for months, as lawmakers debated the criteria and ultimately passed a new definition of failing schools in May and granted the Alabama Department of Education the power to interpret those rules. The final list, released Tuesday morning, contained 78 schools, most of them middle or junior high schools, and nearly all of them in high-poverty areas. Anniston Middle was the only school in Calhoun County that made the list. In a webcast press conference, state schools Superintendent Tommy Bice said middle schools may have figured so heavily in the list because they're the only grade span in which all students are tested under the state accountability system. Anniston Middle School Principal Lynwood Hawkins declined comment on the "failing" rating Tuesday, referring all questions to Frazier. Frazier defended the middle school, pointing to state figures that show improvement in test scores over the past six years. In 2007, 46 percent of the school’s students met or exceeded state standards on the Alabama Reading and Math Test. In 2012, 60 percent of students hit that mark. “We fit the same pattern as other schools on the list,” she said, noting that other “failing” schools had shown improvement in students’ scores on the test. A pathway out? Sen. Del Marsh, R-Anniston, the Accountability Act's primary author, said the designation will give Anniston's families a choice. "Many of them will simply choose to remain," he said. "But those who want to move to another school can do that now." Marsh has long promoted the Accountability Act as a pathway out of failing schools for students who are stuck in them. Transferring out of Anniston Middle may not be so easy, though. The school is the city's only middle-grades institution, which means that students hoping to transfer to another school would have to attend a school outside their district. Even if Anniston's desegregation order allows students to transfer out, nearby school systems are bound by orders that keep them from allowing students in, school officials say. “Due to our desegregation order, we will not be accepting transfer students under the Accountability Act at this time,” Calhoun County Superintendent Joe Dyar said. Oxford City Schools is under a similar order, director of student services Roy Bennett said. Jacksonville City Schools Superintendent Jon Campbell didn't cite a court order, but said the city's school board has already agreed not to alter its admissions policy, which limits admission to Jacksonville residents and children of full-time Jacksonville State University employees. He said board members wanted to keep the city's resources focused on its residents. Scholarship dilemma Desegregation orders don't prevent students from leaving for private schools, but it's still not clear the tax credits will be available for those students either. The state Department of Revenue announced Tuesday that the tax credits won't be available to families zoned for failing schools who are already in private schools. The department also announced that the tax credits won't be available if students transfer to private schools that don't accept scholarships created available a separate program set up under Section 9 of the Accountability Act. Section 9 offers tax credits to businesses if they donate to scholarships programs for low-income children. Leaders of three Anniston private schools -- the Donoho School, Faith Christian School and Sacred Heart of Jesus Catholic School -- told The Star earlier this year that they had no plan to accept the Section 9 scholarships. "It takes away our independence when we have to report information to the state like a public school," Jan Hurd, head of the Donoho School, told The Star on Tuesday. Hurd said Section 9 scholarships would require schools to report test grades and other information to the school system. Hurd said she did not know until Tuesday about the ban on tax credits for schools refusing Section 9. She said the school's board of directors had already decided to decline the scholarships, though the issue would be brought up again at a coming board meeting. Attempts to reach the directors of Faith Christian and Sacred Heart were unsuccessful Tuesday. State revenue director Julie Magee said the decision to link the tax credits to Section 9 was simple. The Accountability Act, she said, defines a private school as one that accepts the Section 9 scholarships. "We're just doing what the law says," she said. School to close Anniston Middle School's place on the failing schools list may be short-lived. The city's school board voted earlier this year to close the school, part of a citywide reorganization being done in response to the city's declining enrollment. City officials have also expressed interest in using the middle school site, across from Lowe's onMcClellan Boulevard, for commercial development. School officials have not set a date for the closure, but Frazier said it will likely happen in two or three years. Marsh said that even with the closure, parents of middle-grades kids in Anniston should continue to qualify for the tax credit. He said the change wasn't a true school closure, but just the closure of a building. "If it was failing in one spot, it's failing in the next," he said. Frazier said the change was indeed a school closure, with Cobb Elementary slated for conversion to a junior high for grades 7-9 and the system's sixth-graders expected to be distributed among the city's elementary schools. If Anniston Middle's families do get the tax credit, that credit would expire once they age out of the middle school -- thus becoming zoned for Anniston High School. Anniston High hasn't met state goals on standardized tests for years, but it wasn't on the failing schools list. Marsh said students using the tax credits who aged out of Anniston Middle wouldn't have to go to Anniston High. "They could continue to go, they'd just have to pay the tuition to go to a private school," he said. Marsh has long maintained that the Accountability Act isn’t perfect, but is the start of a system of school choice for the state’s students. “There’s a bridge there, so that if they don’t want to be in the middle school, they can leave,” he said. Capitol & statewide reporter Tim Lockette: 256-294-4193. On Twitter @TLockette_Star.
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